Our Story

Luke was diagnosed with Linear Scleroderma in May 2013, at the age of 13. His disease has presented in his right upper extremity. Now all of his fingers, his wrist and his elbow have showed decreased mobility and function. In addition, he has discoloration and hardening of the skin in his lower and upper arm. The discoloration is a permanent mark to remind Luke of his diagnosis.

Being diagnosed with a chronic disease has been life changing to Luke and our family. Fortunately, we have had a tremendous amount of support along the way in helping us to adjust to the changes in our lives. Family, friends, teachers, therapists and doctors have all helped us on this journey. We have come to a place of acceptance and gratitude that Luke’s disease is not in fact worse. For many with Linear Scleroderma it is much more challenging. Luke would like to turn his diagnosis of this disease into something positive and make a difference in the lives of children who are also affected.

Luke wants to leave a Lasting Mark on others.

Luke continues to leave a Mark!

Chicago National Scleroderma Conference

July 19th – 21st 

A Lasting Mark & London Jewelers Braclet! 

At the age of 13 Luke was diagnosed with Linear Scleroderma.  His disease caused hardening, deformity, and disability of his right arm and hand.  His disease has brought him many challenges; one of the things most difficult was his inability to extend and shake someone’s hand.

That was the impetus of our charity, A Lasting Mark.  His disease left a lasting mark on him but now he would find the many other ways he could extend one’s hand and leave A Lasting Mark on others.

We all have the power to leave our Mark, our fingerprint, and touch someone else’s life.

This limited edition bracelet gives us all that message.  Our fingerprint never fades from the lives we touch.

 

 

$50 from each bracelet sold will be donated by London Jewelers to A Lasting Mark Foundation which raises monies and awareness for scleroderma in children.  We support research in the hopes of improving treatment for this elusive disease.

In 2013 we created A Lasting Mark.

 We are a 5013c charity. Through the love and generous support of our family and community we were able to donate $100,000 to Dr. Thomas Lehman, the Chief of Pediatric Rheumatology at the world renowned Hospital for Special Surgery. Your generous support has provided Dr. Lehman the help needed to launch his research study of genetics and linear scleroderma. His goal is to advance the development of targeted therapies and improve the quality of life of those children a­ffected with this very rare and underfunded disease.

 In addition we have we have helped to initiate and fund the first ever National Pediatric Educational and Research Forum KGS2! Kids Get Scleroderma Too for the Tri-State Chapter of the Scleroderma Foundation. This October Luke will be the closing speaker at KGS2!18 at Colorado Children’s Hospital.

Children in our community are a­ffected and need our continued support to keep this research going. Help us to continue to leave A Lasting Mark…

With much gratitude,

THE MEDOLLA FAMILY

Luke was diagnosed with Linear Scleroderma in May 2013, at the age of 13. He would like to turn his diagnosis of this disease into something positive and make a difference in the lives of children who are also affected.

If you’d like to make a donation to help the lives of children affected by this disease, click the button below.