What is Linear Scleroderma?

Linear Scleroderma is a rare autoimmune disease that affects children. It is characterized by hardening of the skin on the face or localized to a single extremity of the body. It can cause mild to severe disfigurement. Currently there is not a cure for linear scleroderma.

Kids Get Scleroderma 2

Luke is the closing speaker at the National Conference KGS2 on October 26th & 27th in Denver Colorado!

In 2013 we created A Lasting Mark.

 We are a 5013c charity. Through the love and generous support of our family and community we were able to donate $100,000 to Dr. Thomas Lehman, the Chief of Pediatric Rheumatology at the world renowned Hospital for Special Surgery. Your generous support has provided Dr. Lehman the help needed to launch his research study of genetics and linear scleroderma. His goal is to advance the development of targeted therapies and improve the quality of life of those children a­ffected with this very rare and underfunded disease.

 In addition we have we have helped to initiate and fund the first ever National Pediatric Educational and Research Forum KGS2! Kids Get Scleroderma Too for the Tri-State Chapter of the Scleroderma Foundation. This October Luke will be the closing speaker at KGS2!18 at Colorado Children’s Hospital.

Children in our community are a­ffected and need our continued support to keep this research going. Help us to continue to leave A Lasting Mark…

With much gratitude,

THE MEDOLLA FAMILY

Luke was diagnosed with Linear Scleroderma in May 2013, at the age of 13. He would like to turn his diagnosis of this disease into something positive and make a difference in the lives of children who are also affected.

If you’d like to make a donation to help the lives of children affected by this disease, click the button below.